I have been quiet this week. Babies treatment is tricky and time consuming, heres a look.
DAILY MASSAGES: Daily massaging is "very" important. Like any person with is partially paralyzed, they still need their muscles moved. A body that doesn't move loses muscle tone and the internal organs will cease to function well, which in turn can bring on a whole other set of health problems.

HEATING DEVICES:I use a product called a "Micro-Heat Disc" that you microwave for 4 minutes and it stays warm for approx. 14 hours. These discs are about the size of a frisbee, only thicker and work really well.

WATER: Syringing water is very important since Baby is slowly losing her ability to drink from her little saucer.

RE-CAP OF DAILY ROUTINE:

The following is just an example of what a typical day in my life with Baby is:
6am - long drink of water, bath time and then wrapped in warm towels till dry. Being careful not to let Baby get chilled!!!
7am - While she still can, she exercises in her maze for about 1/2 hour. When she can no longer do that, I will exercise her body for her by moving her legs around and massaging her from head to toe.

7:30am - Breakfast and more water given, followed by a nap.

Noon - Lunch and water given followed by lots of cuddle time and a nice long nap.

7pm - Dinner and water, followed by more cuddle time, full body massage and lots of attention from everyone until its time to go to bed.

11pm - One last drink of water and tucked warmly into her nice soft bed.

*It is important to note that while Baby sleeps, I turn her hourly to prevent her form getting sore (except at night) when I will maybe wake up once or twice to do this and change the diaper under her if necessary. I'm an insomniac anyway.

Baby's new pad:


Baby's Medicine: I will go into what holistic therapies I am trying with her later, when and if I see results.

Labels: Doctor Stef